What happens between 11:59pm and 12:00am the day your baby turns one? This is the question that I have been asking little miss Carly. Since turning one she has started doing all kinds of crazy things. First, she is doing much better with crawling and pulling herself up. We are very happy with the progress that she is making in physical therapy. Second, she is talking much more. She says, da boo (peek-a-boo), uh oh, mama, dada, and bebe (baby). Third, if I don't keep her diaper covered up she takes it off...in her crib...then pee's everywhere. Fourth, since when do the terrible two's start at one? She can throw a temper tantrum like she was a true little devil. But I love my one year old!
Carly had a fun 1st birthday!
I got the kids a little pool to play in during the summer. Carly obviously didn't think much of it. A few toys helped improve her mood slightly but it didn't last long. Guess we will have to work on the pool thing!
Carly has also taken a liking to playing on daddy's computer. This is one of her favorite things to play with and pull herself up to. She's getting blogging practice early.
1 year stats
18.3 lbs. (10th%)
28 inches long (75th%)
44cm head (78th%)
Its been quite a week. Carly got her 12 month shots on March 23rd and showed no reaction to any of the shots. But 8 days later she started a reaction to her MMR and Chicken Pox vaccines. All tuesday, wednesday and thursday of this week she had a fever ranging between 101-104. Needless to say we didn't go much of anywhere, I was up a bunch during the nights and I had a FUSSY little girl. Luckily her fever broke by friday morning and she was able to have her MRI and shunt reprogram.
Now to the nitty gritty. Friday Thad and I had her to the hospital at 7am for her MRI. I wasn't able to be with her when they put her out because of the radiation (radiation, pregnancy...not so good) so Thad stayed with her and I watched from the door while she was put under. I better get used to seeing that since it will be a yearly experience. But the test went good, the shunt reprogram went good and we got the results after. Everything with her
hydrocephalus is under control and her brain function looks good so far. They did find that she has
Chiari One Malformation which right now is non-symptomatic but could be symptomatic in the future. Symptoms could include gagging or major headaches which if she becomes symptomatic could result in surgery to remove the extra bone. We also have to be careful of head trauma, especially at the base of her skull because the extra bone decreases the cushion between her brain and the skull. Also the bone has a higher chance of herniating the cerebellum. We also found that she has
Agenesis of the corpus callosum which is a break in the corpus callosum surrounding her brain. We were told that it is the most common defect in children with congenital hydrocephalus and isn't anything too concerning. The major symptoms we could see from this is seizures which we could see from just having hydrocephalus. But the fact of the matter is that we are starting to see the effects of the hydrocephalus and things are starting to appear. We are at the point that we could start seeing other things start to appear that are associated with her hydrocephalus. The Dr's obviously do not hold a crystal ball and even though her brain looks fully functioning, things can change. But we are hopeful that this will be the end of it and she will have full undamaged function of her brain. Because of these new findings she will have an MRI every year to monitor the Chiari. And to top it all off, miss Carlykins developed hives to the anesthesia and looks like a rose bush.
I got some really cute pictures of her in the bath tonight so those pictures will be posted soon.....HA!
Shanna and Mark Warr
This little girl is in need of a miracle. Please visit little Kayleigh's blog and read her story and her current situation. She is struggling to live right now. She has spent her whole life in the hospital and now may never make it home to live with her family. Please keep her in your prayers, this precious little girl deserves life. She has fought so hard to live, please pray that she gets the chance to have the life of a healthy little girl. My prayers go out to her family during this extremely difficult time.
Carly loved her Cadbury eggs. She even tried to eat one with the tinfoil wrapper on it. Take a look at her awesome hair and her chocloate foo-manchu! The mini's are perfect for her too, they fit perfectly in her mouth...yes, the whole thing! Cayson loved the car and yo yo that the Easter bunny brought for him and the house is now filled with Carly's beautiful music!
I got the kids a little pool to play in during the summer. Carly obviously didn't think much of it. A few toys helped improve her mood slightly but it didn't last long. Guess we will have to work on the pool thing!